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  Home >> Mumbai Nonprofit Organisations >>  Bombay Leprosy Project

 

Volume: XII; Issue: 4                                Oct - Dec 2004

Published by: Bombay Leprosy Project, 11 VN Purav Marg, Sion-Chunabhatti, Mumbai –22
Tel: 25223040; Fax: 25296486; Email: blproject@vsnl.net ; Web page: www.bomlep.org

Award for Outstanding Leprosy Work

Dr R Ganapati, Director, BLP received the Award at the hands of Chief Guest Mrs Jaywantiben Mehta, former Union Minister of State for Power 

We are proud to announce that Bombay Leprosy Project’s work for 3 decades was recognized by National Society for Equal Opportunities for the Handicapped – India (NASEOH-India).

The Sulakshana Ram Janam Pandey Award was conferred on BLP, at the foundation day function held on 9th December 2004 in Mumbai.

Sulakshana Ram Janam Pandey Award 2004

ROUTINE ACTIVITIES

Leprosy control activities

MB

TOT

12,430

10,453

5,942

16,395

New cases detected during

Jan – Dec 2004

181

227

153

74

227

MB positive cases

Jan – Dec 2004

12

Balance active cases

As on Dec 04

170

Cases with disability

Jan – Dec 2004

Gr.1: 19

Gr.2: 30

Total: 49

Balance disabled cases

As on Dec 04

Gr.1: 662

Gr.2: 676

Total: 1338

                                     SPECIAL ACTIVITIES

BLP extends child education sponsorship

BLP inaugurated a Slum Children Literacy Programme (SCLC) at a function held on 1st October 2004 for the children affected by leprosy along with the street children to be conducted in an integrated manner. Dr Chimalgi, Medical Superintendent, Acworth Municipal Hospital for Leprosy (ALH) was the Chief Guest on this occasion. The programme is organized in collaboration with ‘The Monsoon and Sunshine Classes’ being managed by Sr Seraphine at the ALH and is supported by SUR-DEEP, an NGO from Japan, committed to the education needs of the children of leprosy affected persons in Mumbai slums. Education materials and toys were distributed on this occasion to the children attending the classes.

BLP workers receive ‘ILEF’ Award – 2004

Indian Leprosy Foundation (ILEF), an NGO engaged in networking the leprosy NGOs with the aim of achieving leprosy – free India, honoured 12 senior leprosy workers of Bombay Leprosy Project with ILEF Awards at a function held on 4th October 2004. This function was organized in commemoration with the BLP’s 28th Anniversary. Dr ARK Pillai, President, ILEF gave away the awards and congratulated all the awardees.

Rotary Clubs honour Dr R Ganapati with an Award

Fifteen Rotary Clubs of the Western suburbs coming together under the banner of “Harmony” honoured Dr Ganapati, Director, BLP with Vocational Service Award (2004 -2005) for his excellent services to the leprosy affected persons. This award was given at the hands of Mr Aakar Patel, Chief Editor, MID DAY at a function on 8th October 2004. Accepting the award, Dr Ganapati called all the Rotarians to raise their voice to uphold the Human Rights of the innumerable leprosy disabled deprived of physical care.

Dr Pai visited Kushtrog Nivaran Samiti, Panvel on 8 – 11 – 2004 to discuss the progress of Research Investigations in collaboration with Foundation for Medical Research, Mumbai.

World Disabled Day Observed

For the past several years, BLP has pioneered a concept of exhorting agencies working for leprosy, which generally observe World Leprosy Day on 30th January to celebrate also World Disabled Day during the first week of December. This will help to eliminate the stigma and promote the concept of integrated leprosy management with special reference to the care of the disabled. BLP’s Vocational Training Centre (VRC) in Pratiksha Nagar at Sion, Mumbai was the venue of a function on 2nd December 2004, where a large number of leprosy disabled and other physically challenged were present. Dr R Ganapati, Director BLP explained the significance of the concept of integration and said that so far BLP has offered computer training to 120 persons with disabilities and tailoring lessons to 180 leprosy-cured women.

Medical check-up of slum children

Dr R Rao, Medical Officer & Dr Pai conducted medical check-up of children in the class (9th November, 6th & 12th December 2004) at Slum Children Literacy Class at ALH, Wadala and distributed gifts and clothes received through donation when 26 children were examined and dispensed medicines. This activity is a collaborative venture of BLP with “Children of Monsoon and Sunshine” a programme run by a Christian Missionary and  “Surdeep” of Japan and BLP.

Gesture by well-wishers of BLP

Several well-wishers of BLP offer their support in memory of their departed beloved family members by sponsoring food or gifts to the poor and needy leprosy patients. Special meals were distributed to the leprosy and AIDS patients on 24th December 2004 at Eduljee Framjee Leprosy Hospital, Trombay in memory of Late Mr Patel, which was sponsored by his son Mr Devendra Patel from UK.

 

ON GOING RESEARCH IN COLLABORATION

 

Research in Rural areas

Dr Ganapati, Dr Pai & Dr Rao visited rural areas on 30th December 2004 under PHC Apta and Tara villages along with Mr U Thakar and the staff of Kushtrog Nivaran Samiti in Panvel taluka and examined cases under research investigations and POD programme in collaboration with BLP.

Use of Thalidomide in managing chronic reactions

This study is to evaluate the role of Thalidomide as well as to ascertain the duration of maintenance therapy in the management of Type 2 reactions in leprosy. 50 patients of type 2 reaction were given Thalidomide in the dose of 300 mgms per day in divided doses tapered over a period of 6 months.  Patients were maintained on 50 mgms per day.  Cost of the drugs was raised through donations.

 

Role of Cyclosporine in the management of type 1 reaction

. Follow-up of the patients in this on-going study is in progress to assess the recurrence of reactions in the group of patients  receiving cyclosporine as compared to the control group. 

 

Effect of Corticosteroid on bacterial killing, clearance & nerve damage.

A study in collaboration with FMR, Bombay was carried out to evaluate the effect of steroids on bacterial killing and clearance & nerve damage. So far 343 MB patients received MB-MDT with (study) or without (Control) steroids were studied to assess the clinical, histological and viability changes. 139 (41%) patients have undergone reaction requiring steroids, which formed the study group. Follow-up of these patients using community volunteers is in progress.

 

Study on the effect of BCG immunotherapy in leprosy

A collaborative study with FMR is being conducted to study the effect of immunotherapy as an adjunct to chemotherapy on the M.leprae persisters and peripheral nerve functions.  20 MB smear positive patients  treated with MB-MDT have been recruitred so far. Study group receieves immunotherapy with BCG and the control group receives saline as placebo.  Evaluation parameteres include BI, Biopsy, EMG/NCV and clinical photographs.

 

 

SEMINARS / WORKSHOPS / MEETINGS

 

AIDS AND LEPROSY

BLP organized a seminar in collaboration with IAL (MB) on 3rd November 2004 at Sushrut Hospital, Chembur to find the association between leprosy and AIDS. Experts should investigate at the immunological level to establish the association of HIV and Leprosy remarked Dr RM Chaturvedi, Prof in Dept. of PSM, KEM Hospital. Clinicians, Public Health Specialists, Laboratory Experts and NGOs who formed the audience expressed the need to document their experiences widely in the literature.

11 – 10 – 2004: Dr Ganapati & Dr Pai, Mr Kingsley and senior staff of BLP attended the National Seminar on “Integration of leprosy in GHC system of cities & towns – Lessons & experiences” at Worli, Mumbai. Dr Ganapati co-chaired a scientific session; Dr Pai & Mr Kingsley participated as Rapportuer for the scientific sessions.

22 – 12 – 2004: Dr Ganapati, Dr Pai participated as ‘Resource persons’ in the training on leprosy for private practitioners organized by IMA–MB in collaboration with IMA–Thane branch at Thane.

SEMINAR ON ASSESSMENT OF LEPROSY SCENARIO IN THE COUNTRY: BLP organized a seminar on “Assessment of Leprosy Scenario in the Country” in collaboration with ALH RRE Society, IAL - MB and Department of PSM, LTMMC, Sion on 23rd December 2004. Dr ME Yeolekar, Dean of LTMMC, the Chief Guest expressed the need to wipe out leprosy from the country. Dr CR Revankar, Public Health Specialist made a presentation and expressed concern over wrong diagnosis. The participants including PG students deliberated on the need for parameters in Integration era.

OTHER MEETINGS

 

1-10-2004: Dr Ganapati & Dr Pai from BLP; Dr Kini & Mr Paul of Lok Seva Sangam (LSS); Sr Lila of Vimala Dermatological Centre (VDC); Mrs Ruby and Mrs D’souza of Maharashtra Lok Seva Mandal (MLSM) and Dr Dinesh Jain, Regional Secretary (West), GLRA participated in a meeting of GLRA NGOs on and discussed the issues related to future plan of action.

6 – 10 – 2004: Dr Ganapati & Dr Pai attended the Project Holders meeting organized by GLRA at Chennai.

6 – 10 – 2004: Mr Kamath & Mr BK Rao attended Indian Leprosy Foundation (ILEF) Grant Release function at Vile Parle.

7 – 10 – 2004: Dr Ganapati & Dr Pai visited CLTRI, Chengalpattu and had discussions with the staff and Dr PK Ommen, Director, CLTRI after attending GLRA meeting at Chennai.

19 – 10 – 2004: Dr Pai & Mr Kingsley attended ALERT meeting at Acworth Municipal Hospital for Leprosy regarding faculty of MOs training..

23-10-2004: Dr Pai attended the examiners meeting for the Competitive exam conducted by RRE Society at ALH, Wadala, Mumbai.

28 – 10 – 2004: Mrs R R Pai, Non Medical Supervisor visited VN Desai Hospital for discussions on a proposal to start new DOTS centre in H ward of BMC.

31 – 10 – 2004: Dr Ganapati & Dr Pai attended a Seminar on Cutaneous Mycology organized by Ghatkopar Chembur Dermatology Club at Chembur, Mumbai.

6 – 11 – 2004: Dr Ganapati participated in the Seminar on “Final push towards leprosy elimination at Ahmedabad, Gujarat organized by Government of Gujarat.

9 – 11 – 2004: Dr Pai participated in the meeting of District Leprosy Society as a Member of DLS held at Nair Dental College, Mumbai.

10 – 11 – 2004: Dr Rao visited DTO Office at Worli for a meeting with Dr G Ambe, District TB Officer regarding BLP’s proposal to start more DOTS Centres.

16 – 11 – 2004: Dr Ganapati & Dr Pai attended the GLRA meeting at ALH, Wadala with GLRA units and ALH to discuss the progress of Integration of leprosy in General Health Care.

16 – 11 – 2004: Dr Rao visited Bhabha Hospital, Bandra and discussed with Dr Sunita, Zonal Coordinator for TB, BMC regarding DOTS centre.

18 – 11 – 2004: Dr Ganapati, Dr Pai & Dr Rao had a meeting with Dr G Ambe and representatives of Inter Aide regarding the participation of BLP in Urban DOTS in Bandra, Mumbai.

19 – 11 – 2004: Dr Ganapati attended State Leprosy Society meeting at Mantralaya, Mumbai.

28 – 11 – 2004: Dr Ganapati & Dr Pai participated in the Seminar on “Medical Practitioners and Medico-legal Issues as a part of CME programme at Shanmukhananda Hall.

29 – 11 – 2004 Dr Pai & Mr Kamath visited Eduljee Framjee Leprosy Hospital at Trombay and discussed regarding the admission of leprosy patients with Mr Furtado, Chairman of the Hospital.

17 – 12 – 2004: Mr U Thakar of Kushtrog Nivaran Samiti, Shantivan, Panvel visited BLP and had discussions with Dr Ganapati and Dr Pai about the seminar to be held on 23rd December 2004.

18 – 12 – 2004: Dr Pai participated in the Quarterly Scientific Meeting of IADVL-MB as a member of Managing Committee held at Aurangabad.

29 – 12 – 2004: Dr Ganapati, Dr Pai attended Executive Committee meeting of Hind Kusht Nivaran Sangh – Maharashtra branch and RRE Society at ALH, Wadala, Mumbai.

ACADEMIC CONTRIBUTIONS & PUBLICATIONS

Article (Invited) on “Hansen’s disease” by Dr R Ganapati & Dr V V Pai was sent for publication in 56th Edition of Conn’s Therapy (2006) on 13th December 2004.

An article on “Reactions and their Management” by Dr R Ganapati & Dr V V Pai has been published in Journal of the Indian Medical Association (JIMA), Vol.102, No.12, December 2004.

NEWS & NOTES

Release of booklet on honours conferred to BLP staff.

A booklet titled “BLP – Team: Duly recognized” was released by Ms Maria Sarkhosch, Project Officer for South India, German Leprosy & Tuberculosis Relief Association (GLTRA), Germany on 15th October 2004 in Mumbai. This booklet gives an account of various honours and appreciation conferred on BLP staff by several organizations for their contributions towards the cause of leprosy. Dr Dinesh Jain, Regional Coordinator, Western Region, GLTRA was present.

30 – 10 – 2004: Mr Mirajkar Rehabilitation Officer participated in the organization of a cricket match through All India Cricket Association for the Disabled (AICAD) at Thane.

9 – 11 – 2004: Dr Rao distributed clothes to leprosy patients at ALH, Wadala, Mumbai.

22 – 11 – 2004: Dr Pai & Mr Mirajkar participated in the “Hello Sakhi” a Television programme on Health organized by Doordarshan, Govt of India at Worli, Mumbai.

Exhibition on leprosy

26 – 11 – 2004: Mrs R Pai, Non Medical Supervisor & Mr Tripathi, Physiotherapy Technician of BLP participated in an Exhibition on leprosy at NASEOH, Chembur, Mumbai. Besides the posters and books on leprosy, the products prepared by rehabilitated individuals suffering from leprosy and other disabilities were displayed. Greeting Cards prepared by the Physically Challenged children trained at VRC of BLP as a part of rehabilitation were also sold and the sale proceeds will be used for the cause of leprosy.

3 – 12 – 2004: Dr Ganapati, Dr Pai & Dr Rao visited All India Institute of Physical Medicine & Rehabilitation as a part of International Disabled Day and launching of Golden Jubilee celebrations of AIIPM&R.  Meeting with Dr J Hegde, Sheriff of Mumbai, the chief guest on this occasion.

Human Rights Day Observed

10 – 12 – 2004: Dr PK Ommen and staff of CLTRI visited BLP and also SCLC, Wadala & ALH on the occasion of Human Rights Day. This activity is a collaborative programme of “Slum Children Literacy Class” run by a Christian Missionary, “Surdeep” of Japan and BLP. Dr Oomen and Dr J Chimalgi, Superintendent, AMHL appreciated the initiative taken by BLP to fight for the rights of deprived children besides leprosy patients.

TRAINING

13 – 10 – 2004: Ms Lesley McDowell, a medical student from UK visited BLP as an observer for 6 weeks.

23 – 10 – 2004: Dr Pai participated as an Examiner for Competitive exams in Leprosy conducted by RRE at ALH.

28 – 10 – 2004: BLP donated four sewing machines to Sr Seraphine for the trainees of SCLC in ALH, Wadala, Mumbai

23 – 11 – 2004: Dr Pai attended the faculty review meeting for training the MOs of Municipal Corporation of Greater Mumbai at ALH, Wadala, Mumbai.

24 – 11 – 2004: Dr Pai attended as a faculty for training of BMC Medical Officers at ALH under the Integration of leprosy at GHC.

10 – 12 – 2004: Refresher training to PMW & NMS at VRC on POD and record maintenance.

24 – 12 – 2004: Mr AK Tripathi, Physiotherapy Technician conducted training on POD to the PMWs of Kushtrog Nivaran Samiti, Panvel.

 

DEPUTATION FOR TRAINING

24 – 12 – 2004: Trainees of tailoring course under ITP conducted in VRC, Pratiksha Nagar, Sion visited Kushtrog Nivaran Samiti, Shantivan Panvel.

VISITORS’ DIARY 

15 – 10 – 2004
Ms Maria Sarkhosch, Project Manager, GLRA & Dr Dinesh Jain, visited BLP and had discussions about the project activities.

16 – 10 – 2004
Mr Balasubramanian, GLRA, Chennai and Dr Dinesh Jain, Western Region, GLTRA visited BLP and had a meeting with BLP officials.

21 – 10 – 2004
Dr V Shetty, Mr U Thakar, Dr S Ghate visited BLP for discussions regarding collaborative research investigations.

9 – 11 – 2004
Mrs Vijayalakshmi of St.Louis, USA and Ms Gayatri, student from New York, USA visited BLP and its field activities.

16 – 11 – 2004
Ms Glynis Rajeev, Sr. Executive, Wockhardt Ltd, visited BLP and had discussions regarding a study on Vitiligo.

16 – 11 – 2004
Officials from Camlin Ltd., Mumbai, visited BLP and discussed regarding Thalidomide proposal.

27 – 11 – 2004
Meeting of officials from Camlin Ltd regarding the requirement of Thalidomide to treat the patients with chronic type 2 reaction.

7 – 12 – 2004
District Technical Support Team (DTST) of GLRA visited BLP and supplied POD cards needed for POD programme in project area.

17 – 12 – 2004
Dr Vikas, PG student from LTMMC, Sion visited BLP and had discussions with Dr Pai & Dr Rao regarding the uses of Thalidomide in leprosy. Literature on Thalidomide was given.

Meetings attended by the officials and staff

Date

Place

Meeting with Person(s) / Purpose

19 – 10 – 2004

ALH, Wadala

Faculty of MOs training

23 – 10 – 2004

ALH, Wadala

Competitive exam by RRE Society

28 – 10 – 2004

VN Desai Hospital

Proposal to start new DOTS centre in H ward of BMC

31 – 10 – 2004

Chembur

Seminar on Cutaneous Mycology organized by Ghatkopar Dermatology Club

09 – 11 – 2004

Nair Dental College, Mumbai

District Leprosy Society as a Member

10 – 11 – 2004

DTO Office, Worli

Dr G Ambe, District TB Officer. Proposal to start more DOTS Centres.

16 – 11 – 2004

ALH, Wadala

GLRA units. Discuss the progress of Integration of leprosy in General Health Care.

Bhabha Hospital, Bandra

Dr Sunita, Zonal Coordinator for TB, BMC regarding DOTS center.

18 – 11 – 2004

Bandra, Mumbai

Dr G Ambe and representatives of Inter Aide regarding the participation of BLP in Urban DOTS

19 – 11 – 2004

Mantralaya, Mumbai

State Leprosy Society meeting

28 – 11 – 2004

Shanmukhananda Hall, Matunga

Seminar on “Medical Practitioners and Medico-legal Issues

29 – 11 – 2004

Eduljee Framjee Leprosy Hospital, Trombay

Discussion regarding the admission of leprosy patients with Mr Furtado, Chairman of the Hospital

18 – 12 – 2004

Aurangabad

QSM of IADVL-MB as a member of Managing Committee