Indian Epilepsy Association (Bombay Chapter)
&
Samman (Epilepsy Support Group) Coming together
is a beginning , Keeping together is progress, Growing together is
success
History
·
Registered in December
1971 as a Public Charity Trust.
·
Nine
founder members – Dr. Baldev Singh, Dr. B. Ramamurthi, Dr. T. K. Ghosh,
Dr. E. P. Bharucha, Dr. Anil Desai, Dr N. H. Wadia, Dr. K.V. Mathai,
Dr. K. S. Mani, and Mrs. Roshan H. Dastur.
·
Initial
chapters were at Bombay, Banglore, Delhi, Vellore and Calcutta. Now
there are 16 Chapters.
·
Founder
President of Bombay Chapter: Dr.
E. P. Barucha.
·
Mission:
Raise epilepsy awareness; Increase acceptance of persons with epilepsy;
Provide relief and rehabilitation to patients & their families.
·
Tools
Used: Cultural programmes, Conferences, Public awareness programmes, Competitions,
Special programmes for patients & their families, Training and
development programmes.
Office
Bearers
PRESIDENT
:
Dr. B.S. Singhal
VICE
PRESIDENT
:
Dr. Arun D. Bhatt
Ms. Carol D’Souza
Ms. Kavita Shanbhag
HON.
SECRETARY
:
Dr. Pravina U. Shah
JT. SECRETARIES
:
Dr. Sangeeta H. Ravat
Dr. Urvashi R. Shah
COMMITTEE MEMBERS :
Dr. Arun B. Shah
Dr. Anaita Hegde
Dr. Chandrasekhar Deopujari
Dr. Jayanti Mani
Mr. Ignatius
Misquitta
Ms. Sujatha Gopalan
Mr. Christopher Fernandes
Office
Indian Epilepsy Association Bombay Chapter,
E-Cell, J.S.S. Municipal School Building
Nana Chowk, Grant Road West
Mumbai 400007
Tel: 56057751 / 23850563
email: ecellin@yahoo.co.in
Activities
at E-Cell
Counselling
) week days
Special Education ) with
prior appointment
Remedial “
)
Support Group Meetings – 2nd & 4th
Saturday
(People wanting to attend first time please phone in advance)
Excursion trip – 5th Saturday
Pre Vocational Activity
Other
Activities : Awareness
Programs, Quarterly Newsletter, Exhibitions cum sales, Competitions,
Workshops, Conferences, Yearly picnic,
Medicine subsidy
Samman Philosophy
If
you can’t be a sun, be a star
If you can’t be a highway, be a trail
If you can’t be a river, be a brook
It’s not by the size that you win or you fail
But be the best of whatever you are
Samman Mission Statement: ‘To
be a group that interacts with love and care, where each person
is treated equally and with respect, and to work at improving our
quality of life and that of others living with epilepsy.’
Our
Goals
Awareness and Education at all levels.
Boosting of morale by support group activities.
Compliance of all thumb rules for a healthy and regular life
style.
Doctor’s
advice should be followed religiously.
Empathy and encouragement by family members and friends.
Family to give optimal support without being over protective.
God helps those who help themselves - message to all patients.
Honesty, hard work and sincerity in all that we do.
Independence
– physical, financial, emotional - the ultimate goal.
Joyful
and useful living – the ultimate outcome.
In Brief
Epilepsy - What It Is
·
Epilepsy
is the name given to recurrent seizures or fits.
·
Epilepsy
is a treatable brain disorder.
·
70%
of those treated appropriately and on time get their seizures under
control and are able to live
normal lives.
·
Very important in getting seizures under control is taking
medications regularly and on time, eating food regularly and on
time, exercise and proper sleep.
Epilepsy:
What It Is Not
·
Epilepsy is not caused due to black magic, evil or good spirits.
·
Epilepsy cannot be cured by 'Jadoo Tona' or tantricks.
·
Smelling an onion or slipper will not make a person having
a fit, come out of it quicker.
·
Epilepsy is not contagious.
·
Epilepsy is not a form of madness.
·
Epilepsy cannot be cured by marriage.
|