Bio-data of karmayog epilepsy resources expert
Carol
Frances D’Souza
Consultant
Psychologist
Indian Epilepsy Association,
Bombay
Chapter
E-Cell,
J.S.S.
Municipal
School
Building
Nana Chowk,
Grant Road West
Mumbai 400007
Tel :
65057751
Email
: ecellin@yahoo.co.in
Education:
M.A.
Counselling Psychology,
University
of
Mumbai
.
Professional
Experience:
|
Name
of Association / Univ. / Industry
|
Period
|
Nature
of duties /
Position
Held
|
Reporting
to
|
|
|
Professional
Experience
|
|
|
|
|
|
Indian
Epilepsy Association (IEA)
|
Dec
2004 to date July
2000 to date
|
Vice-President
Overall
running of the organization, conduct support group meetings,
awareness programs in schools, arrange for sheltered work and
exhibition cum sales etc.
Consulting
Psychologist – Individual, Family & Group counseling
|
Dr.
P.U. Shah, Hon. Secretary,
Bombay
Chapter
|
|
|
Bangalore
Univ.
in collaboration with
Community Based Rehab. (CBR) Network (
South Asia
) & IEA
|
Since
Jan 2005
|
Developed
the course content for modules on ‘Counseling’ and
‘Social Aspects of Epilepsy’ for the ‘Diploma in
Epilepsy Care’ a distance education course beginning July
2006
|
Dr.
H.V. Srinivas, General Secretary, IEA
|
|
|
British
Medical Journal,
London
|
From
Oct 2003
|
Member
of the Patients’ Advisory Group
|
Ms.
M. Baker
|
|
|
Global
Campaign Against Epilepsy: WHO, International League Against
Epilepsy & International Bureau for Epilepsy
|
2002-2003
|
Member
– Guide Your Journey Committee – advisory panel for women
with epilepsy
|
Ms.
H. de Boer, IBE Global Campaign Representative
|
|
|
IEA
|
2002-2003
2001-2002
1997-1999
1996
onwards
|
Co-editor
‘Epilepsy Care’
Bombay
chapter newsletter. Co-editor, Epilepsy
India
Epilepsy
India
Newsletter
Editor
– Samman Patra :
Bombay
Chapter Newsletter
Coordinator
Epilepsy Support Group
|
Dr.
P.U. Shah
-do-
-do
-do-
|
|
|
Procter
& Gamble
|
Aug
’89 to June 92
|
Secretarial
|
Head
of Marketing Dept.
|
|
|
Bayer
India Ltd.
|
May
’87 to July ‘89
|
Secretarial
|
Head
P.R. Dept,
|
|
|
Hoechst
India Ltd.
|
June
’86 to Feb ‘89
|
Secretarial
|
Head
Veterinary Dept.
|
|
|
FICON
|
Nov.
’80 to Feb ‘86
|
Secretarial
|
M.D.
|
|
|
|
|
|
|
|
|
Research
|
|
|
|
|
|
Mumbai
Univ.
|
1999-2000
|
Student
|
Dr.
Gawali
|
Influence
of disclosure of epilepsy status on self esteem
|
|
Indian
Epilepsy Assn.
|
2003-2004
|
Co-investigator
|
Dr.
P.U. Shah
Dr.
U.R. Shah
|
Living
with epilepsy – National Survey on Quality of Life Issues in
Epilepsy
|
|
Invited
Speaker
|
|
|
|
|
|
Organizer
|
Date
|
Conference
|
Place
|
Topic
|
|
World
Health Org. (WHO), International League Against Epilepsy (ILAE),
International Bureau for Epilepsy (IBE)
|
Feb 12,
2001
|
2nd
Phase launch of the Global Campaign Against Epilepsy.
Present: Director General WHO & 80 professionals
involved in epilepsy care from around the world
|
W.H.O.,
Geneva
|
Living
with epilepsy in the world today
|
|
Indian
Epilepsy Assn. (IEA) & Indian Epilepsy Society (IES)
|
Sept 23,
2005
|
6th
Jt. Conference of the IEA & IES
|
Jaipur
|
Debate –
Epilepsy disability or not
|
|
ILAE, IBE,
WHO
|
Feb 12,
2002
|
European
Press Conference
|
Amsterdam
|
Living
with epilepsy : overcoming stigma
|
|
ILAE, IBE
|
May 2001
|
24th
International Epilepsy Congress
|
Buenos Aires
|
Living
with epilepsy in a developing country – problems and
possibilities
|
|
ILAE, IBE
|
Aug 30,
2004
|
5th
Asian & Oceanian Epilepsy Congress
|
Bangkok
|
Reducing
Prejudice & Improving Understanding of Epilepsy
|
|
ILAE, IBE
|
Nov 13,
2000
|
2nd
Asian & Oceanian Epilepsy Congress
|
New Delhi
|
My
experiences with epilepsy
|
|
ILAE, IBE
|
Nov 8,
1998
|
1st
Asian & Oceanian Epilepsy Congress
|
Taiwan
|
Experiences
of the epilepsy support group, Mumbai
|
|
Poster
Presentations
|
|
|
|
|
|
ILAE, IBE
|
May 18,
2001
|
24th
International Epilepsy Congress
|
Buenos Aires
|
Effect of
support group membership, disclosure of epilepsy status &
social support on self-esteem of persons with epilepsy. Main
author
|
|
IEA, IES
|
Dec 2002
|
3rd
Jt. Conference of the IEA & IES
|
Lucknow
|
E-Family
Care: A Pilot study on family intervention for epilepsy.
Co-author
|
|
IEA, IES
|
Dec 2001
|
2nd
Jt. Conference of the IEA & IES
|
Mumbai
|
Epilepsy
education in secondary municipal schools - Greater Mumbai.
Co-author
|
|
Workshops
|
|
|
|
|
|
Epilepsy
Foundation of
America
|
Sept
11-13, 2002
|
Leadership
Workshop on
International
Capacity
Building
|
New Orleans
|
Participant
|
|
Academy
for Clinical Excellence
|
June 28,
2003
|
Overview
of Clinical Research & Good Clinical Practice for
Investigators
|
Mumbai
|
Participant
|
|
IBE, ILAE
(24th International Epilepsy Congress)
|
May 13,
2008
|
Pre-conference
workshop on Neuropsychological evaluation in epilepsy – a
practical course
|
Buenos Aires
|
Participant
|
|
IEA,
Bombay
|
April 1998
|
Epilepsy
Educator’s Workshop – Training the Trainers
|
Mumbai
|
Participant
& Organizer
|
|
British
Medical Journal
|
Oct 10,
2003
|
Improving
doctor- patient interaction – understanding the patient
perspective
|
London
|
Participant
|
Publications:
Authored the book ‘Conquering Epilepsy’ : true
stories of people living with epilepsy – December 2001
‘Rehabilitation of persons having epilepsy’ published in the
National Epilepsy Conference (E-Con 2001) brochure.
Regular contributor to ‘Epilepsy
India
’: newsletter of the IEA & IES
|
|
