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Bio-data of karmayog epilepsy resources expert

Carol Frances D’Souza Consultant Psychologist
Indian Epilepsy Association,  Bombay Chapter
E-Cell, J.S.S. Municipal School Building
Nana Chowk, Grant Road West
Mumbai 400007
Tel :
65057751
Email :
ecellin@yahoo.co.in

Education:  M.A. Counselling Psychology, University of Mumbai .

Professional Experience:
 

Name of Association / Univ. / Industry

Period

Nature of duties /

Position Held

Reporting to

 

Professional Experience

 

 

 

 

Indian Epilepsy Association (IEA)

Dec 2004 to date July 2000 to date

Vice-President  

Overall running of the organization, conduct support group meetings, awareness programs in schools, arrange for sheltered work and exhibition cum sales etc.

Consulting Psychologist – Individual, Family & Group counseling

Dr. P.U. Shah, Hon. Secretary, Bombay Chapter

 

Bangalore Univ. in collaboration with Community Based Rehab. (CBR) Network ( South Asia ) & IEA

Since Jan 2005

Developed the course content for modules on ‘Counseling’ and ‘Social Aspects of Epilepsy’ for the ‘Diploma in Epilepsy Care’ a distance education course beginning July 2006

Dr. H.V. Srinivas, General Secretary, IEA

 

British Medical Journal, London

From Oct 2003

Member of the Patients’ Advisory Group

Ms. M. Baker

 

Global Campaign Against Epilepsy: WHO, International League Against Epilepsy & International Bureau for Epilepsy

2002-2003

Member – Guide Your Journey Committee – advisory panel for women with epilepsy

 

Ms. H. de Boer, IBE Global Campaign Representative

 

IEA

2002-2003  

2001-2002

1997-1999

1996 onwards

Co-editor ‘Epilepsy Care’ Bombay chapter newsletter. Co-editor, Epilepsy India Epilepsy India Newsletter

Editor –  Samman Patra : Bombay Chapter Newsletter

Coordinator Epilepsy Support Group

Dr. P.U. Shah

-do-

-do

-do-

 

Procter & Gamble

Aug ’89 to June 92

Secretarial

Head of Marketing Dept.

 

Bayer India Ltd.

May ’87 to July ‘89

Secretarial

Head P.R. Dept,

 

Hoechst India Ltd.

June ’86 to Feb ‘89

Secretarial

Head Veterinary Dept.

 

FICON

Nov. ’80 to Feb ‘86

Secretarial

M.D.

 

 

 

 

 

 

Research

 

 

 

 

Mumbai Univ.

1999-2000

Student

Dr. Gawali

Influence of disclosure of epilepsy status on self esteem

Indian Epilepsy Assn.

2003-2004

Co-investigator

Dr. P.U. Shah

Dr. U.R. Shah

Living with epilepsy – National Survey on Quality of Life Issues in Epilepsy

 


 

Invited Speaker

 

 

 

 

Organizer

Date

Conference

Place

Topic

World Health Org. (WHO), International League Against Epilepsy (ILAE), International Bureau for Epilepsy (IBE)

Feb 12, 2001

2nd Phase launch of the Global Campaign Against Epilepsy.  Present: Director General WHO & 80 professionals involved in epilepsy care from around the world

W.H.O., Geneva

Living with epilepsy in the world today

Indian Epilepsy Assn. (IEA) & Indian Epilepsy Society (IES)

Sept 23, 2005

6th Jt. Conference of the IEA & IES

Jaipur

Debate – Epilepsy disability or not

ILAE, IBE, WHO

Feb 12, 2002

European Press Conference

Amsterdam

Living with epilepsy : overcoming stigma

ILAE, IBE

May 2001

24th International Epilepsy Congress

Buenos Aires

Living with epilepsy in a developing country – problems and possibilities

ILAE, IBE

Aug 30, 2004

5th Asian & Oceanian Epilepsy Congress

Bangkok

Reducing Prejudice & Improving Understanding of Epilepsy

ILAE, IBE

Nov 13, 2000

2nd Asian & Oceanian Epilepsy Congress

New Delhi

My experiences with epilepsy

ILAE, IBE

Nov 8, 1998

1st Asian & Oceanian Epilepsy Congress

Taiwan

Experiences of the epilepsy support group, Mumbai

Poster Presentations

 

 

 

 

ILAE, IBE

May 18, 2001

24th International Epilepsy Congress

Buenos Aires

Effect of support group membership, disclosure of epilepsy status & social support on self-esteem of persons with epilepsy. Main author

IEA, IES

Dec 2002

3rd Jt. Conference of the IEA & IES

Lucknow

E-Family Care: A Pilot study on family intervention for epilepsy.  Co-author

IEA, IES

Dec 2001

2nd Jt. Conference of the IEA & IES

Mumbai

Epilepsy education in secondary municipal schools - Greater Mumbai. Co-author

Workshops

 

 

 

 

Epilepsy Foundation of America

Sept 11-13, 2002

Leadership Workshop on International Capacity Building

New Orleans

Participant

Academy for Clinical Excellence

June 28, 2003

Overview of Clinical Research & Good Clinical Practice for Investigators

Mumbai

Participant

IBE, ILAE (24th International Epilepsy Congress)

May 13, 2008

Pre-conference workshop on Neuropsychological evaluation in epilepsy – a practical course

Buenos Aires

Participant

IEA, Bombay

April 1998

Epilepsy Educator’s Workshop – Training the Trainers

Mumbai

Participant & Organizer

British Medical Journal

 

 

Oct 10, 2003

Improving doctor- patient interaction – understanding the patient perspective

London

Participant

 Publications:              
                             Authored the book ‘Conquering Epilepsy’ :  true stories of people living with epilepsy – December 2001
                             ‘Rehabilitation of persons having epilepsy’ published in the National Epilepsy Conference (E-Con 2001) brochure.
                             Regular contributor to ‘Epilepsy India ’: newsletter of the IEA & IES

  




It is one of the beautiful compensations of this life that no one can sincerely try to help another without helping himself. --Charles Dudley Warner